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JUNE 20

The Other Side of Tuesday X: a new kind of pain

 

This is part of a series that is following the progress of Carol Mohrbacher, who began treatment for breast cancer in January. The most recent installment was on June 6.
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Since her appointment May 31 with oncologist Dr. Dean Peng, Carol Mohrbacher has taken a chemical drug Femara (Letrozole)—one pill a day.
Normally it is given for early breast cancer in women who have gone through menopause and have taken Tamoxifen for five years. It has been shown helpful in reducing or eliminating the natural hormone production after menopause. The Breast Cancer “Invader” that attacked Mrs. Mohrbacher is a hormone receptor. The purpose is to eliminate its food source.
She writes: “I have begun to notice some increase in ‘hot flashes,’ bone ache and some skin dryness … I began this ‘by mouth’ chemical therapy reluctantly. Dr. Peng recommended it to me immediately, in February, when it was found that I was not a candidate for the traditional Breast Cancer Chemo Therapy Protocol, due to the unidentifiable ‘lesions.’ ”
In May she and Dr. Peng reviewed and compared her latest MRI to one taken in February.
The good news was, to quote the report: “There is no significant interval change in the presence of scattered tiny osteolytic metastatic lesions at multiple sites…”
Metastatic lesions are cancer. The report also noted that her degenerative disk disease was unchanged. So far, so good.
At that visit Dr. Peng urged her to have a monthly “infusion” of a chemical Pamidronate (Aredia), along with the pill form of chemical therapy Femara.
She reluctantly agreed to try it. She had the two-hour treatment on June 14. An infusion involves a nurse hooking the patient to an IV leading to a bag “of chemicals.”
The rest of the day was uneventful. But something much worse was coming.
She writes: “I was feeling rather achy when I went to bed at 11 pm…fell off to sleep and was awaken at 4 a.m. in excruciating pain…virtually breathing hurt so bad that I didn’t want to breathe. I laid there for an hour, praying and trying to work through this ‘new adversary’…pain like none I have ever experienced.”
She was too busy resisting the pain to be frightened. “… It was as if the ligaments and tendons were pulling out of my joints…”
Her husband Don helped her to the family room and fixed a bed on the sectional with lots of pillows and cool air.
“I found myself crying out whenever I moved…Remember when I had surgery to remove the tumor in my left breast and an axillary bisection removing all the lymph nodes under my left arm that the surgeon could find …I took no pain medication…”
Don called Kaiser as soon as the desk was manned to find out if her symptoms were worrisome…and if it was OK to take the Vicodin Dr. Peng had prescribed.
“Because of the breathing tightness, I was concerned that taking a painkiller might only exacerbate my miserable situation.”
This was a wake up call. Months ago she decided, after learning that she was not eligible for the Breast Cancer Chemo Therapy Protocol, not to take any other chemo.
She writes: “Well, words are words…in the midst of trying to sort out everything, sometimes, when the doctor says take this pill and have this infusion of this ‘medicine’ which may lengthen your quality of life…it sounds different than, ‘Take this Chemo Therapy Pill and the Chemo Therapy IV.’ I had my first go at what for me was a bad reaction.”
Vicodin helped. She could breathe, but not move without extreme pain. Even her organs hurt.
About 9 p.m. nausea set in and she threw up for several hours.
She finally made it to bed and awoke the next morning, much better, although the pain continued to pulse through her body.
She writes: “My mouth is dry as a bone and I am sipping water constantly…I have survived, I think. My bones and internals feel like I imagine a boxer would feel after ten rounds.”
She does not plan to take any more chemical therapies. “My decision is based on the quality of life I have right now…or should I say in a few days when my body returns…I won’t, again, give one of the days that God has given me over to do these horrible (for me) treatments. Today I look at everyone who has endured this barbaric treatment to be martyrs to life…in my case, I will take what God gives me and am ready to turn over the reins and move on when it is time.”
She will continue to advocate the Patrons of Special Care for Special Seniors Foundation “Patrons” (www.pscssf.org) for seniors with Alzheimer’s and other dementias.
She will also do the 3-Day Breast Cancer Walk for the Cure in San Diego, Nov. 9–11. She invites others who want to join her on this 60 miles in three days to visit www.the3day.org/sandiego07/carolmohrbacher “Carol’s Crew” and support her walk.
She will also take part in The Roadrunner—sponsored Queen of Hearts Breast Cancer Benefit Motorcycle Ride Sept. 22. Her group is also called Carol’s Crew.
She writes: “Life is for living. Some of us can give, some of us can offer a hand, some of us can do the walk, run or ride, but do it to make a difference to help people. That is what life is all about.”
June 24, at 7 am, she will be on the Fox 6 XETV Weekend Show talking about Patrons and its vision and goals. She will introduce new President and CEO Michael Alessio. In July, she will be on The Boomer Show with Brian Christie, again sharing about the devastation of Alzheimer’s to the person and family, and what Patrons can do to help.

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